Guillain-Barre

My son has Guillain-Barre.  I'm heartbroken and scared.  Will he get better?  How long will it take?  Will he have permanent disabilities or pain the rest of his life?  I feel so helpless and angry.  Why my baby?  1 in 100,000 children get this?!?  We are the statistic!  It is a horrible feeling.

Throughout this journey I see the lack of resources and support because it is so rare.  We hope to give back some day when this is a distant memory.

He tried to play video games today which was reassuring. He's not quite himself yet but we see some progress.  We will do 5 days of IV IG and see how he responds.  We are very hopeful since he is so young and does not have any paralysis.  His lower and upper extremities are weak but he has motor and sensory function.  Motor function is diminished.