Admitted to Hospital

I carry Jayden into the ED again Sunday AM.  He no longer eats or drinks or walks.  My husband and I cry all day and night wondering what we can do to help him.  The nurse takes his vitals (which are all normal) and brings us back right away.  She also thinks something is wrong and tells me she wants a doctor to see him immediately.

He complained a lot of pain in the long bones all week.  I am fearful he could have leukemia but baffled by his normal lab results at every visit.  He still has no reflexes so the doctor orders x-rays of his L-spine, pelvis, femurs, tib/fibs and feet.  They are all normal.  I feel sick to my stomach with worry.  He decides to admit Jayden overnight for a "work-up".

I am told Heme/Onc is consulted and that they will get more labs drawn in the evening.  I ask for a neuro consult as he is not able to walk and has no reflexes.  They say they will discuss it with them after getting an MRI.
We get an MRI the next day at 2:30pm.  I am livid as he is now complaining of upper extremity weakness and tingling.  He described this to me as "my hands are tired and dry mom".  We talked about when you sit on your feet and they fall asleep and what numbness and tingling feel like.  He decides that is what he is trying to describe by saying "dry".
The MRI shows demyelination of his nerve roots in the cervical and lumbar/sacral area.  This is consistent with Guillain-Barre Syndrome.  We wait for the LP to come back which confirms the diagnosis with elevated protein levels.